"About Face 2" Survey
(Data: 2011)
Introduction
- The ‘About Face 2’ survey investigated issues identified by the earlier ‘About Face’ survey
- These issues included the experiences, needs and quality of life (QoL) of patients with head and neck cancer
Methodology
- Interview-based pan-European survey of 104 head and neck cancer patients from Belgium, France, Portugal, Italy, Spain and Sweden
- Questions were based on recall of patients’ own experiences in terms of:
- Pre-diagnosis
- At diagnosis
- At treatment
- Post-treatment
- Impact of the disease, including quality of life and side effects
Key findings
- At every stage of the journey, patients want better communication and understanding
- The overwhelming majority of patients were not aware of head and neck cancer before diagnosis
- Many said physicians did not take early symptoms seriously
- Information about treatment has to be tailored to the individual
The results from the ‘About Face 2’ survey were presented by Professor Jean-Louis Lefebvre as a poster session at the 2011 European Multidisciplinary Cancer Congress (EMCC).
(Patient, France) |
(Patient, Italy) |
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